COVID-19 - research studies on children and young people's views

Children and young people are experiencing the impact of COVID-19, and lockdown, in many ways - from their education to staying at home with family, from the way they access health and support services to their emotional health and wellbeing. We're compiling studies across the UK that are collecting children and young people's experiences and insights.
Last modified
23 November 2020

If there are any issues with the links, errors or new surveys that should be featured, please contact and_us@rcpch.ac.uk.

Introduction

Children and young people are experiencing and feeling the impact of COVID-19 in a number of different ways - from changes to their education to staying home with families, changes to the way health services support them as well as changes to their emotional health and wellbeing.

Across the UK they have been sharing their insights with several charities, organisations and academic institutes about living through lockdown and COVID-19.  These valuable, real life experiences need to be viewed alongside scientific and medical data sets, in order to effectively plan for services over the coming months. 

The voices of children and young people are central to recovery planning, with RCPCH supporting clinicians, services and settings to understand their needs by collating surveys and insight from a range of external organisations and charities that have captured the voice and views of children, young people, young adults and their families.

You can keep children and young people’s voice at the centre of informing and influencing service design and delivery, by reviewing the surveys, interrogating the data and including children and young people’s voice to enhance your plans, position statements or journal articles by. Publications will then better reflect and reference the voice and views of children and young people alongside medical and scientific data. 

Inclusion and exclusion criteria

We are compiling studies that are collecting the experiences and insights of children and young people (up to 25 years) within the UK.

Inclusion criteria:

  • Include views from children, young people and young adults aged 0–25 years
  • In English language
  • Relate to views from the UK
  • Are conducted in 2020
  • Use method(s) appropriate to children and young people

Exclusion criteria:

  • Include views from adult (over 25 years) and children/young people/young adult (up to 25 years) data where the data for 0-25 years cannot be extracted
  • Include fewer than 25 responses from children/young people/young adults
  • Do not include primary responses from children, young people or young adults

Completed studies

Study Location Age range Target group Total responses Lead organisation
Cancer and Coronavirus: as tough as it gets UK   Children and young people 80 young people + 184 parents CLIC Sargent
Chronic illness and Coronavirus (PDF) UK   Young people with chronic illness experience TBC RAiISE
Child/Young person (living with overweigh or obesity) service user survey (PDF) UK

4-15 (parents/carers)

16-17

Children and young people with obesity experience 21 included due to specialist voice University of Leeds
Co-SPACE Covid-19: supporting parents, adolescents and children during epidemics) UK 11-16 Parents and young people (parents must complete/consent first) 1300 University of Oxford

CCopeY: Young people's mental health and coping styles during and after COVID-19 lockdown

Read an update from the young advisors!

UK 16-24 Young people 796 Imperial College
TeenCovidLife Scotland 12-17 Young people 5548 University of Edinburgh
Our views on COVID-19 UK 14-18 Young people 1000 British Science Association
Our voices speaking truth to power (PDF) NI 11-25 Young people 2545 NI Youth Forum
Stress among children in England during the Coronavirus lockdown England 8-17 Children and young people 3851 Office of the Children's Commissioner for England
What challenges have young people who face inequalities experienced during the Covid-19 lockdown?  England 10-25 Young people from LGBTQ+, Gypsy, Traveller and Roma and Young Carer communities 31 Association of Young Peoples Health
Young People's Mental Health during the COVID-19 Pandemic South West England 13-14 Young people 1047 University of Bristol
Some sort of normal (return to school experiences) England 8-17 Children and young people 1500 Office of the Children's Commissioner for England

Mental health of children and young people in England

 

England 5-22 Children and young people 3570 Lifestyles Team NHS Digital
Living through a lockdown - reflections and recommendations from young people at risk of serious violence England 14-25 Young people at risk of youth violence 41 Redthread, Streetdoctors, MAC-UK
Checking in: voices of young people during lockdown (PDF) London 14-24 Young people 157 Partnership for Young London, Good Thinking
Children's experiences of physical activity in lockdown England 7-16 Children and young people 1164 Sport England
Back on Track: supporting young people out of lockdown  England and Wales 11-16 Young people 1009 YMCA

Life on Hold (PDF)

UK   Children and young people 2150 Children's Society
Teenagers’ experiences of life in lockdown (TELL) Caring for your wellbeing (PDF) UK 16-19 Young people 100 University of Manchester
My Future, My Feelings, My Family UK 12-25 Young carers 961 Carers Trust

Coronavirus: Impact on Young People with Mental Health Needs

3 studies from March – Sept 2020

UK 13-25 Young people with mental health experience 4,258 Young Minds

How to build back better: listening to the voices of our young people 

Scotland 13-18 Young people facing disadvantage 1,347 MCR Pathways
Devalued by forces beyond our control UK 13-25 Young people supported by Barnardos 113 Barnardo's
Online harms UK 16-23 Young people 22 included due to specialist voice Catch22
Children’s information on coronavirus UK 7-12 Children 150 Edge Hill University
You-COPE: Mental health consequences experienced by young people aged 16-24 during first months of the COVID-19 lockdown  UK 16-24 Young people 1,507 University College London,  / University of Sussex/ Imperial College London
Mental health and COVID-19: In our own words UK 7-24 Children and young people 4,000 Barnardos / HYPE Bristol / HYPE Plymouth, Article 12, TIGER
Cancer x coronavirus: the impact on young people UK 13-30 Cancer experienced young people 118 Teenage Cancer Trust
#ScotYouthandCovid Children and young people’s participation in crisis Scotland 10-16 Young people 25 A Place in Childhood
Spend time with me: children and young people’s experiences of COVID-19 and the justice system Scotland   Young people with youth justice experience 48 Centre for Youth and Criminal Justice
LockdownLowdown - what young people in Scotland are thinking about COVID-19 (PDF) Scotland 11-25 Young people 2,400

-YouthLink Scotland

Young Scot

Scottish Youth Parliament

How are you doing? Scotland 8-14 Young people 3,698 Children's Parliament
Our voices aren’t in lockdown Northern Ireland 11-25 Young people 780 NI Youth Forum
Impact of lockdown on young people (PDF) UK 14-25 Young people 9,913 Duke of Edinburgh Award
Take the temperature UK 14-25 Young people 1,500 Beatfreeks Youth Trends
Impact of COVID-19 on girls and young women UK 4-18 Girls and young women 7,000 GirlGuiding UK
Young people in lockdown   16-25 Young people 1,022 Princes Trust / YouGov
Needs of young people through COVID (PDF)   Under 18 Young people 55 Diana Award
Impact of lockdown on young people (PDF) UK 13-24 Young people 2,002 University of Sheffield
The Oxford ARC study: achieving resilience during COVID-19 (PDF) UK 13-18 Young people 321 University of Oxford
Coronavirus and me Wales

3-7

7-18

Children and young people 23.719 Children's Commissioner Wales
Cost of the school day during COVID-19 UK   Children and young people 1,400 Child Poverty Action Group
Happen at home Wales 8-11 Children 1,000 Primary School Network Wales
The experience of the coronavirus lockdown in low income families in England and Wales England and Wales 16-19 Young people 188 StreetGames
Reimagining the future of paediatric care post-COVID-19 - a reflective report of rapid learning UK 9-25 Children and young people 57 RCPCH
You-Cope Disruptions experienced by young people aged 16-24 during first months of the COVID-19 lockdown UK 18-24 Young adults 1,274 University College London / University of Sussex/ Imperial College London
A survey of the effects of lock-down due to corona-virus on students in primary and secondary schools (PDF) Sheffield 5-15 Children and young people 162 Sarah Jannat Iqbal, Year-6 student at Avicenna Academy, Sheffield
Understanding the needs of young carers in the context of the covid-19 global pandemic (PDF) East Anglia/West Berkshire 12-22 Children and young people

20

included here due to specialist voice

University of East Anglia
My Health, Our Future – At Home (PDF) updated report Suffolk 6-25 Children and Young people 3,000 Healthwatch Suffolk
Life in lockdown UK 11-21 Young people 60 Power2
Youth In lockdown (PDF) Essex 9-25 Young people 202 ECVYS

Ongoing studies - open

Study Location Age range Target group Lead organisation
COVID-19 Peer Support  UK 16-18 Young People

Wellcome, University of Oxford

Investigating mental health in autistic young people during the COVID-19 Pandemic UK 15-19 Young people with Autism Kings College London
Life for young people in lockdown North East England 14-30 Young people University of Durham
Coronavirus and autistic children and young people  UK   Children and young people Ambitious About Autism
Psychological responses to the climate and COVID-19 crises in young people, and their agency to build the world they hope to see UK 16-24 Young adults Imperial College London
Corona Chronicles - Children researching their everyday lives, education and relationships during the coronavirus pandemic (CHEER) Yorkshire and Humber, England 9-11 Children University of Huddersfield
Growing up under COVID-19 UK (and compared to other countries) 14-18 Young people ECORYS, University of Huddersfield
Young trans and gender diverse lives’ in the UK: the mental health impact of COVID-19  UK 16-25 Trans/gender diverse Nottingham Trent University
What is it like to be a teenager or young adult in a global pandemic? (PDF) UK 11-18 (25 with SEND) Young people NCB
Understanding the needs of young adults following the COVID-19 pandemic UK 16+ Young people / young adults NIHR Maudlsey Biomedical Research Centre, Kings College London
Citizen enquiry into COVID-19 UK   Young people No lead organisation
#Eco-capabilities:  wellbeing before and after the pandemic Cambridgeshire 7-8 Four classes of Y3 children from two primary schools in new areas of high deprivation Anglia Ruskin University

SHARE studies

  • Hydrocephalus
  • Cancer
  • Chronic Kidney Disease
  • Congenital Heart Disease
  • Cystic Fibrosis
UK 12-25 Long term condition patients University of Southampton Teaching Hospitals with a number of condition specific partners
Born in Bradford study Bradford 5-18 Bradford school age children and young people Bradford Teaching Hospitals NHS Foundation Trust
CAMHS in South London survey South London/Maudsley Young people CAHMS service users South London and Maudsley NHS Foundation Trust
Young people’s emotional health & wellbeing coronavirus survey Hull 10-25 Young people Hull City Council

Ongoing studies - awaiting results

Study Location Age range Target group Lead organisation
Exploring experiences of life at home during lockdown for young people in care UK   Young people Research in Practice / TACT
Keeping well in a COVID-19 crisis UK 16+ Mental health service users King's College London
Impact of COVID-19 on outdoor learning among children UK Early years - 16 Children and young people, parents, workforce University of Hull
CONTRAST study UK 11-15 Young people Institute of Applied Health Research, University of Birmingham
#CovidUnder19 - life under coronavirus UK / Global 8-17 Children and young people

Queen’s University Belfast and global partners

Identifying and supporting 'off-radar' children and young people at risk of violence and abuse UK 16+ Experience of abuse at home Kings College London
Social media and mental health UK 16-24 Young people University of Manchester
Youth services in Brighton & Hove Brighton & Hove 11-25 Young people Brighton & Hove City Council
Young people and lockdown Newcastle   Young people YPAGNe