Children and young people are experiencing the impact of COVID-19, and lockdown, in many ways - from their education to staying at home with family, from the way they access health and support services to their emotional health and wellbeing. We're compiling studies across the UK that are collecting children and young people's experiences and insights.
Last modified
1 July 2020
Post date
26 May 2020
Table of contents
This page is being updated twice a month. If there are any issues with the links, errors or new surveys that should be featured, please contact and_us@rcpch.ac.uk.
Introduction
Children and young people are experiencing and feeling the impact of COVID-19 in a number of different ways - from changes to their education to staying home with families, changes to the way health services support them as well as changes to their emotional health and wellbeing.
Across the UK they have been sharing their insights with several charities, organisations and academic institutes about living through lockdown and COVID-19. These valuable, real life experiences need to be viewed alongside scientific and medical data sets, in order to effectively plan for services over the coming months.
The voices of children and young people are central to recovery planning, with RCPCH supporting clinicians, services and settings to understand their needs by collating surveys and insight from a range of external organisations and charities that have captured the voice and views of children, young people, young adults and their families.
You can keep children and young people’s voice at the centre of informing and influencing service design and delivery, by reviewing the surveys, interrogating the data and including children and young people’s voice to enhance your plans, position statements or journal articles by. Publications will then better reflect and reference the voice and views of children and young people alongside medical and scientific data.
Inclusion and exclusion criteria
We are compiling studies that are collecting the experiences and insights of children and young people (up to 25 years) within the UK.
Inclusion criteria:
- Include views from children, young people and young adults aged 0–25 years
- In English language
- Relate to views from the UK
- Are conducted in 2020
- Use method(s) appropriate to children and young people
Exclusion criteria:
- Include views from adult (over 25 years) and children/young people/young adult (up to 25 years) data where the data for 0-25 years cannot be extracted
- Include fewer than 25 responses from children/young people/young adults
- Do not include primary responses from children, young people or young adults
Completed studies
| Study | Location | Age range | Target group | Total responses | Lead organisation |
|---|---|---|---|---|---|
| Coronavirus: impact on young people with mental health needs (PDF) | UK | 13-25 | Young people with mental health experience | 2,111 | Young Minds |
| LockdownLowdown - what young people in Scotland are thinking about COVID-19 (PDF) | Scotland | 11-25 | Young people | 2,400 | -YouthLink Scotland Young Scot Scottish Youth Parliament |
| How are you doing? | Scotland | 8-14 | Young people | 3,698 | Children's Parliament |
| Our voices aren’t in lockdown | Northern Ireland | 11-25 | Young people | 780 | NI Youth Forum |
| Impact of lockdown on young people (PDF) | UK | 14-25 | Young people | 9,913 | Duke of Edinburgh Award |
| Take the temperature | UK | 14-25 | Young people | 1,500 | Beatfreeks Youth Trends |
| Impact of COVID-19 on girls and young women | UK | 4-18 | Girls and young women | 7,000 | GirlGuiding UK |
| Young people in lockdown | 16-25 | Young people | 1,022 | Princes Trust / YouGov | |
| Needs of young people through COVID (PDF) | Under 18 | Young people | 55 | Diana Award | |
| Impact of lockdown on young people (PDF) | UK | 13-24 | Young people | 2,002 | University of Sheffield |
| The Oxford ARC study: achieving resilience during COVID-19 (PDF) | UK | 13-18 | Young people | 321 | University of Oxford |
| Coronavirus and me | Wales | 3-7 7-18 | Children and young people | 23.719 | Children's Commissioner Wales |
| Cost of the school day during COVID-19 | UK | Children and young people | 1,400 | Child Poverty Action Group | |
| Happen at home | Wales | 8-11 | Children | 1,000 | Primary School Network Wales |
| The experience of the coronavirus lockdown in low income families in England and Wales | England and Wales | 16-19 | Young people | 188 | StreetGames |
| Reimagining the future of paediatric care post-COVID-19 - a reflective report of rapid learning | UK | 9-25 | Children and young people | 57 | RCPCH |
| You-Cope Disruptions experienced by young people aged 16-24 during first months of the COVID-19 lockdown | UK | 18-24 | Young adults | 1,274 | University College London / University of Sussex/ Imperial College London |
| A survey of the effects of lock-down due to corona-virus on students in primary and secondary schools (PDF) | Sheffield | 5-15 | Children and young people | 162 | Sarah Jannat Iqbal, Year-6 student at Avicenna Academy, Sheffield |
| Understanding the needs of young carers in the context of the covid-19 global pandemic (PDF) | East Anglia/West Berkshire | 12-22 | Children and young people | 20 included here due to the hard to reach nature of the group | University of East Anglia |
| My Health, Our Future – At Home | Suffolk | Young people | 2,572 | Healthwatch Suffolk | |
| Life in lockdown | UK | 11-21 | Young people | 60 | Power2 |
| Youth In lockdown (PDF) | Essex | 9-25 | Young people | 202 | ECVYS |
Ongoing studies - open
| Study | Location | Age range | Target group | Lead organisation |
|---|---|---|---|---|
| Keeping well in a COVID-19 crisis | UK | 16+ | Mental health service users | Kings College London |
| Coronavirus experience survey | UK | Young people and with cancer experiences | CLIC Sargent | |
| Growing up under COVID-19 | UK (and compared to other countries) | 14-18 | Young people | Nuffield Foundation |
| Young trans and gender diverse lives’ in the UK: the mental health impact of COVID-19 | UK | 16-25 | Trans/gender diverse | Nottingham Trent University |
| You-COPE: Youth COVID response personal experience tracking health and wellbeing amongst 16-24 year olds in the UK during and after the COVID-19 pandemic | UK | 16-24 | Young adults | University College London |
| Impact on rural life | Scotland | 18-28 | Rural young adults | Rural Youth Project |
| My health, our future: at home (primary) | Suffolk | 11-25 | Young people | Healthwatch Suffolk |
| Impact of COVID-19 on outdoor learning among children | UK | Early years - 16 | Children and young people, parents, workforce | University of Hull |
| Understanding the needs of young adults following the COVID-19 pandemic | UK | 16+ | Young people / young adults | NIHR Maudlsey Biomedical Research Centre, Kings College London |
| Citizen enquiry into COVID-19 | UK | Young people | No lead organisation | |
| Happen at home | Wales | 8-11 | Children | Primary School Network Wales |
| #Eco-capabilities: wellbeing before and after the pandemic | Cambridgeshire | 7-8 | Four classes of Y3 children from two primary schools in new areas of high deprivation | Anglia Ruskin University |
| SHARE: Hydrocephalus | UK | 12-25 | Hydrocephalus patients | Leeds Teaching Hospitals, University of Southampton Teaching Hospitals, SHINE and Harry’s HAT |
| CONTRAST study | UK | 11-15 | Young people | Institute of Applied Health Research, University of Birmingham |
| Chronic illness and coronavirus survey | UK | Young people with chronic illness experience / parents & carers | RAiISE | |
| Born in Bradford study | Bradford | 5-18 | Bradford school age children and young people | Bradford Teaching Hospitals NHS Foundation Trust |
| Child/Young person (living with overweight or obesity) service user survey | UK | 4-15 (parents/carers) 16-17 | Children and young people with obesity experience | University of Leeds |
| #CovidUnder19 - life under coronavirus | UK / Global | 8-17 | Children and young people | Queen’s University Belfast and global partners |
| CAMHS in South London survey | South London/Maudsley | Young people | CAHMS service users | South London and Maudsley NHS Foundation Trust |
| Identifying and supporting 'off-radar' children and young people at risk of violence and abuse | UK | 16+ | Experience of abuse at home | Kings College London |
| Young people’s emotional health & wellbeing coronavirus survey | Hull | 10-25 | Young people | Hull City Council |
| Young carers and young adult carers survey about coronavirus | UK | 13-25 | Young carers /young adult carers | Carers Trust |
| Co-SPACE Covid-19: supporting parents, adolescents and children during epidemics) | UK | 11-16 | Parents and young people (parents must complete/consent first) | University of Oxford |
| The Big Barnardo’s Conversation | UK | 16-24 | Young people | Barnardo's |
Ongoing studies - awaiting results
| Study | Location | Age range | Target group | Lead organisation |
|---|---|---|---|---|
| The Tell Study | UK | 16-19 | Young people | University of Manchester |
| SHARE study (PDF) | UK | 12-25 | Young people with cancer experience | University of Southampton and University of York with CCLG (Children’s Cancer and Leukaemia Group) |
| Coronavirus (COVID-19) carers' survey | East Anglia | Young carers | Caring Together | |
| Children and young people’s mental health and wellbeing during coronavirus | UK | 13-17 | Young people | Mind |
| Social media and mental health | UK | 16-24 | Young people | University of Manchester |
| CCopeY: Young people's mental health and coping styles during and after COVID-19 lockdown | UK | 16-24 | Young people | Imperial College London |
| The Big Barnardo’s Conversation | UK | 8-15 | Young people | Barnardo's |
| Youth services in Brighton & Hove | Brighton & Hove | 11-25 | Young people | Brighton & Hove City Council |
| Online harm | UK | 16-26 | Young adults | Catch22 |
| Coronavirus information project – children’s survey | UK | 7-12 | Children | Edge Hill University |
| SHARE: Chronic Kidney Disease | UK | 12-30 | Children, young people and, young adults, and parents, affected with kidney conditions | British Association for Paediatric Nephrology and University of Southampton, Kidney Care UK and Kidney Research UK |
| SHARE: Congenital Heart Disease | UK | Congenital heart disease patients | University Hospitals Southampton, British Heart Foundation and the Children’s Heart Federation | |
| SHARE: Cancer | UK | Cancer patients | University of Southampton, University of York, Children’s Cancer and Leukaemia Group | |
| Young people and lockdown | Newcastle | Young people | YPAGNe |