BPSU | RCPCH

BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

News

BPSU will soon launch a new data collection platform

17 March 2022

We've worked with the University of Dundee Health Informatics Centre on a new platform to collect data on rare diseases - making it easier for clinicians to report cases and complete their clinical questionnaires.

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BPSU new data collection platform

The BPSU office is working with the University of Dundee Health Informatics Centre to develop a new data collection platform to collect data on rare diseases, making it easier for clinicians registered on the BPSU reporting scheme to report cases and complete their clinical questionnaires. This ...

BPSU

Research

News

Rare Disease &Us - views from children, young people and families

28 February 2022

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the RCPCH Engagement Committee has pulled together views and thoughts in this letter.

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BPSU study - Neonatal stroke presenting/diagnosed in the first 90 days of life

The study is led by Tizard bursary winner Dr T’ng Kwok and will provide a current description of neonatal stroke including the associated factors, management and outcomes. By exploring how babies with neonatal stroke present and are cared for, future studies looking at prevention and new treatment o...

BPSU

Research

Document

BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings

More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...

BPSU

Rare disease

Public health

News

We're hosting a free two-day symposia on COVID-19 from a paediatric perspective

1 April 2021

The British Paediatric Surveillance Unit in collaboration with Public Health England are to commence a series of webinars accessible by all. Registration is free for both days, more details on how to sign up can be found below.

News

What led me to start my own BPSU study?

19 February 2021

Dr Chenqu Suo, winner of the Sir Peter Tizard research bursary in 2018 and Co-Trainee Rep on the BPSU Scientific Committee tells us about her own study and how other trainees can get involved in research with the BPSU.

News

Richard Lynn to step down from BPSU with more than three decades of service

16 February 2021

After 31 years of dedicated service as the British Paediatric Surveillance Unit’s (BPSU) Scientific Coordinator, Richard Lynn will be leaving the BPSU at the end of March. Richard’s unparalleled commitment to the BPSU and rare disease epidemiology has been integral to the Unit’s continued success.

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BPSU study - Avoidant/Restrictive Food Intake Disorder (ARFID)

Surveillance of Avoidant/Restrictive Food Intake Disorder (ARFID) is due to commence in March 2021. In conjunction with parallel reporting through the Child and Adolescent Psychiatric Surveillance System, this study aims to establish incidence rates of ARFID presenting to secondary health care, refe...

Area of medicine

Academic medicine

Allergies

Community child health

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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...

Community child health