Basic page
BPSU study - End-stage renal disease (ESRD)
Surveillance of end-stage renal disease in early infancy concluded in May 2012. The study group are yet to publish a paper.
BPSU
The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
Basic page
BPSU study - Congenital hypothyroidism
Surveillance of primary congenital hypothyroidism concluded in June 2012 with follow-up to June 2015. This UK study explored how many babies and children up to and including five years of age were found each year to have congenital hypothyroidism. This included babies diagnosed after a positive newb...
Basic page
BPSU study - autoimmune Addison’s disease in children
Surveillance of Autoimmune Addison's disease commenced in July 2011 and concluded in July 2012. The study was led by Dr Hima Bindu Avatapalle, winner of the Sir Peter Tizard Bursary 2009-10. A paper has yet to be published.
Basic page
BPSU study - Severe microcephaly (SSM-UKI)
Surveillance of severe microcephaly in the UK and Ireland commenced in October 2017. This study will find out how many UK babies are born with microcephaly each year and how seriously this affects their health and developmental outcomes, including problems with hearing and vision. It will provide a ...
Basic page
BPSU study - Listeria infection in infants
Surveillance of listeria infection in infants less than 90 days commenced in September 2017. The study aims to establish the incidence of listeria infection in young infants, define whether some ethnic groups or geographical areas are more affected and describe the management and clinical outcome of...
Basic page
BPSU study - Juvenile-onset Systemic Lupus Erythematosus
Surveillance of Juvenile-onset Systemic Lupus Erythematosus (JSLE) commenced in September 2017. This study aims to determine the incidence of JSLE in children and young people in the UK and Ireland. The data will be analysed to better understand the epidemiology and clinical features of the disease ...
Committee
BPSU Scientific Committee
The British Paediatric Surveillance Unit Scientific Committee oversees the scientific matters of the BPSU, providing advice and support for researchers wishing to undertake surveillance of rare paediatric disorders through the BPSU 'electronic orange card' reporting scheme.
Basic page
BPSU study - Life threatening bronchopulmonary dysplasia
Surveillance of life threatening bronchopulmonary dysplasia (BPD) commenced in July 2017. The study team aim to describe the incidence of life threatening BPD of prematurity, describe the antecedent factors, current treatment choices used in the UK and Ireland (including a description of the support...
Committee
BPSU Partnership Board
The officers of the British Paediatric Surveillance Unit are responsible to the Scientific Committee, which in turn is accountable to the BPSU Partnership Board. The Partnership Board was established in 2014 and comprises representation from the three parent bodies of the BPSU, the RCPCH, Department...
Basic page
BPSU study - Deaths in children with epilepsy
Surveillance of deaths in children and young people with epilepsy (excluding Scotland) commenced in October 2016. The study team were hoping to determine the size of the problem of deaths in children affected by epilepsy, to compare the differences between sudden unexplained death in epilepsy (SUDEP...