BPSU | RCPCH

BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

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Child Health Futures - Rare Disease Development Fund

Getting funding for research into rare diseases is still a challenge. The RCPCH, in collaboration with the British Paediatric Surveillance Unit (BPSU), has set up this fund to support research and education in children’s rare diseases. Can you support us?

BPSU

Rare disease

Research

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BPSU study - Clinical characteristics of children with pneumococcal meningitis

BPSU surveillance of the clinical characteristics of children with pneumococcal meningitis is due to commence in January 2020. This study will estimate the incidence of childhood pneumococcal meningitis in the era of pneumococcal conjugate vaccines; describe symptoms and signs at presentation; descr...

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BPSU study - Button battery ingestion, inhalation or insertion

BPSU surveillance of the unintentional ingestion, inhalation or insertion of button batteries in children requiring removal or attempted removal commenced in February 2021. This study will help inform services for the prevention and treatment of children who have accidentally swallowed or choked on ...

Area of medicine

Community child health

Ear nose and throat

Emergency medicine

General paediatrics

Intensive care medicine

News

A rare treat - two young people report back from our rare disease tea party

8 August 2019

Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...

News

BPSU surveillance of HIV infection and vertical HIV exposure now concluded

6 August 2019

Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.

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BPSU study - Herpes simplex virus

BPSU surveillance of neonatal herpes simplex virus disease in infants less than 90 days of ages commenced in July 2019 and will run for 4.5 years. This study will assess the current disease burden of HSV to inform future practice on detection, prevention and management of this dangerous disease.

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BPSU study - Surveillance of female genital mutilation (FGM) in children and young people under the age of 16 in the UK and ROI

Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...

BPSU

Adolescent health

Research

Resource

BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

BPSU

Rare disease

Research

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BPSU study - Severe chronic fatigue syndrome / myalgic encephalitis (CFS/ME)

This BPSU study will collect information on all young people aged between five and 16 years who receive a diagnosis of severe Chronic Fatigue Syndrome or Myalgic Encephalitis (CFS/ME). The study aims to explore how many young people across the UK and Ireland have severe CFS/ME, the length of time fr...

Community child health

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BPSU study - Severe complications of enterovirus or human parechovirus infection

This BPSU study investigates severe complications of enterovirus (EV) or human parechovirus (HPeV). It is intended to improve our knowledge of the age-specific incidence, clinical presentation and management, as well describe the survival and rates of long-term complications of severe EV/HPeV infect...

Cardiovascular

Child and adolescent mortality

Infectious diseases

Intensive care medicine