BPSU | RCPCH

BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

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BPSU study - Glucocorticoid induced adrenal suppression

BPSU surveillance of outcome of symptomatic glucocorticoid induced adrenal suppression commenced in September 2020. This study will estimate how many people are presenting to healthcare providers with adrenal suppression causing symptoms because of them currently or previously taking glucocorticoid ...

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BPSU study - Outcome of resuscitated term babies with no heart rate detected at 10 minutes of age

This surveillance study commenced in November 2020. This study will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age: describe the demographic characteristics, clinical features and initial management of this populat...

Intensive care medicine

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Child Health Futures - Rare Disease Development Fund

Getting funding for research into rare diseases is still a challenge. The RCPCH, in collaboration with the British Paediatric Surveillance Unit (BPSU), has set up this fund to support research and education in children’s rare diseases. Can you support us?

BPSU

Rare disease

Research

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BPSU study - Clinical characteristics of children with pneumococcal meningitis

BPSU surveillance of the clinical characteristics of children with pneumococcal meningitis is due to commence in January 2020. This study will estimate the incidence of childhood pneumococcal meningitis in the era of pneumococcal conjugate vaccines; describe symptoms and signs at presentation; descr...

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BPSU study - Button battery ingestion, inhalation or insertion

BPSU surveillance of the unintentional ingestion, inhalation or insertion of button batteries in children requiring removal or attempted removal commenced in February 2021. This study will help inform services for the prevention and treatment of children who have accidentally swallowed or choked on ...

Area of medicine

Community child health

Ear nose and throat

Emergency medicine

General paediatrics

Intensive care medicine

News

A rare treat - two young people report back from our rare disease tea party

8 August 2019

Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...

News

BPSU surveillance of HIV infection and vertical HIV exposure now concluded

6 August 2019

Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.

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BPSU study - Herpes simplex virus

BPSU surveillance of neonatal herpes simplex virus disease in infants less than 90 days of ages commenced in July 2019 and will run for 4.5 years. This study will assess the current disease burden of HSV to inform future practice on detection, prevention and management of this dangerous disease.

Document

BPSU study - Surveillance of female genital mutilation (FGM) in children and young people under the age of 16 in the UK and ROI

Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...

BPSU

Adolescent health

Research

Resource

BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

BPSU

Rare disease

Research