BPSU | RCPCH

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

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BPSU study - Enterovirus and parechovirus meningitis

Surveillance of enterovirus and parechovirus meningitis in infants less than 90 days of age concluded in July 2015. The study team hope to understand the clinical burden of the condition. A paper has now been published in Archives of Disease in Childhood - see below link to the abstract.

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BPSU study - Neonatal exchange blood transfusion (EBT)

Surveillance of neonatal exchange blood transfusion (EBT) in infants of 28 days of age or under in the United Kingdom and Ireland concluded in October 2015. The study aims to ascertain the current incidence and complication rates of EBT, as well as the practical difficulties of performing an EBT. Th...

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BPSU study - Group B streptococcal disease (GBS)

Surveillance of Group B streptococcal (GBS) disease in British and Irish infants less than 90 days of age concluded in April 2015. Knowledge of the current epidemiology in this age group is needed to assess the impact of current guidelines and provide baseline information for a GBS vaccine programme...

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BPSU study - Complete and incomplete Kawasaki disease (KD)

Surveillance of complete and incomplete Kawasaki disease (KD) in British and Irish children concluded in February 2015. A paper has now been published in Archives of Disease in Childhood. A link to the abstract can be found below. In addition a webinar has now been produced outlining some of the...

BPSU

Rare disease

Research

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BPSU study - Haemolytic uraemic syndrome (HUS)

Surveillance of haemolytic uraemic syndrome (HUS) in British and Irish children under the age of 16 concluded in October 2014. A paper has now been published in the BMJ Paediatrics Open journal. Link to the abstract can be found below.

BPSU

Rare disease

Research

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BPSU study - Raised blood lead levels

Surveillance of raised blood levels in children concluded its surveillance period in June 2012. A report was published in 2018, and a link to the document can be found below.

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BPSU study - Gender identity disorder

Surveillance of gender identity disorder concluded in May 2013. This study was a dual surveillance project collecting data both through the British Paediatric Surveillance Unit (BPSU) and the Child and Adolescent Psychiatric Surveillance System (CAPSS) at the Royal College of Psychiatrists. The stud...

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BPSU study - End-stage renal disease (ESRD)

Surveillance of end-stage renal disease in early infancy concluded in May 2012. The study group are yet to publish a paper.

BPSU

Rare disease

Research

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BPSU study - Congenital hypothyroidism

Surveillance of primary congenital hypothyroidism concluded in June 2012 with follow-up to June 2015. This UK study explored how many babies and children up to and including five years of age were found each year to have congenital hypothyroidism. This included babies diagnosed after a positive newb...

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BPSU study - autoimmune Addison’s disease in children

Surveillance of Autoimmune Addison's disease commenced in July 2011 and concluded in July 2012. The study was led by Dr Hima Bindu Avatapalle, winner of the Sir Peter Tizard Bursary 2009-10. A paper has yet to be published.