BPSU | RCPCH

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

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BPSU study - Food protein induced enterocolitis syndrome (FPIES)

This BPSU study investigates food protein induced enterocolitis syndrome (FPIES), a rare delayed type of food allergy which leads to repeated vomiting and other gastrointestinal symptoms up to several hours after a problem food (or baby formula) is eaten. There is very limited data on FPIES in the U...

European Society for Paediatric Infectious Diseases (ESPID) - Infection Surveillance Research Grant [OPEN]

https://www.espid.org/award-details.aspx?group=awards&id=16

This is a new research grant by ESPID and INOPSU to support infection surveillance across two or more European countries. This grant aims to facilitate infection surveillance research in Europe by ESPID researchers.

Award programme/theme

Project grant

Funding amount range

Under £50,000

Submission deadline

31 December 2025

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BPSU study - Congenital ichthyosis

This two year, prospective BPSU study investigates the incidence, early management and outcomes at 12 months, of babies born with harlequin ichthyosis (HI) or collodion membrane (CM) born between 1 November 2018 and 31 October 2020. These are rare genetic conditions characterised by thick, tight sca...

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BPSU study - Sydenham's chorea

The first ever prospective surveillance of Sydenham's chorea in the UK and Ireland commenced in November 2018 and will run for two years. This study is being undertaken in collaboration with the Exeter Medical School and the Child and Adolescent Psychiatry Surveillance System. The study aims to exa...

News

Dr Shamez Ladhani appointed as Chair of the British Paediatric Surveillance Unit

20 August 2018

Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.

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BPSU study - Fetal Alcohol Syndrome

Surveillance of Fetal Alcohol Syndrome (FAS) commenced in October 2018. The study aims to determine the incidence of FAS in the UK and Ireland; investigate which services are accessed by babies and children affected by the condition; and raise awareness about FAS among clinical practitioners. Th...

News

Raising awareness for Group B Strep Infection in babies: awareness of Group B Strep saves lives

12 July 2018

July is Group B Strep (GBS) Awareness Month. Jane Plumb, Chief Executive of Group B Strep Support, a charity dedicated to providing general information and guidance about GBS, writes a guest blog to raise awareness about the risks associated with Group B Strep.

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Privacy notice - British Paediatric Surveillance Unit (BPSU

This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it. Privacy details on the clinical data collected by the study teams is a...

BPSU

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BPSU - Annual reports

The British Paediatric Surveillance Unit (BPSU) has published its first Five-Year Report, bringing together the Unit's achievements and impact between 2021 and 2025. The report showcases how national surveillance of rare childhood conditions has informed research, policy and clinical care across the...

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BPSU study - Acute severe poisonings

Commencing in July 2018, this surveillance study aims to determine the incidence of accidental poisoning; identify trends in severe poisonings that might inform public health interventions; describe the demographics of presenting populations; and calculate the severity of the poisoning event as dete...