BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year. 

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BPSU Privacy Notice

This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it. Privacy details on the clinical data collected by the study teams is a...
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BPSU study - Attention Deficit Hyperactivity Disorder (ADHD) in transition between children’s services and adult services (CATCh-uS)

Surveillance of children and adolescents with Attention Deficit Hyperactivity Disorder (ADHD) in transition between children’s services and adult services (CATCh-uS) focused on what happens to young people with ADHD when they are too old to stay with children’s services. Surveillance was also run in...
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BPSU study - Acute rheumatic fever

Surveillance of acute rheumatic fever (ARF) in children and young people aged 16 years and younger concluded in May 2016. The study is being led by Dr Mary Salama of Birmingham Children's Hospital, winner of the Sir Peter Tizard Bursary. The study group are yet to publish their findings.