Formed in 1986, the BPSU is a activity supported by Public Health England, UCL Institute of Child Health and the Royal College of Paediatrics and Child Health.
The unit aims to:
- facilitate research into uncommon childhood infections and disorders for the advancement of knowledge and to effect practical improvement in prevention, treatment and service planning
- allow paediatricians to participate in surveillance of uncommon disorders and to lessen the burden on reporting doctors of such requests arising from numerous different sources
- increase awareness within the medical profession and public of the less common disorders studied and respond rapidly to public health emergencies
- collaborate with our link surveillance units in the UK and across the world.
Phone: +44 (0)20 7092 6173/74
Email: bpsu@rcpch.ac.uk
Recent content
News
Enter the BPSU and CAPSS art competition on the theme, "rare disease and me"
9 April 2019
Help the British Paediatric Surveillance Unit (BPSU) and Child and Adolescent Psychiatry Surveillance System (CAPSS) design the front covers of their next annual reports...and win a £50 Amazon eGift voucher!
Resource
BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU study - Severe chronic fatigue syndrome / myalgic encephalitis (CFS/ME)
This BPSU study will collect information on all young people aged between five and 16 years who receive a diagnosis of severe Chronic Fatigue Syndrome or Myalgic Encephalitis (CFS/ME). The study aims to explore how many young people across the UK and Ireland have severe CFS/ME, the length of time fr...
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BPSU study - Severe complications of enterovirus or human parechovirus infection
This BPSU study investigates severe complications of enterovirus (EV) or human parechovirus (HPeV). It is intended to improve our knowledge of the age-specific incidence, clinical presentation and management, as well describe the survival and rates of long-term complications of severe EV/HPeV infect...
News
Surveillance of Food protein induced enterocolitis syndrome (FPIES) starts this month
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
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BPSU study - Food protein induced enterocolitis syndrome (FPIES)
This BPSU study investigates food protein induced enterocolitis syndrome (FPIES), a rare delayed type of food allergy which leads to repeated vomiting and other gastrointestinal symptoms up to several hours after a problem food (or baby formula) is eaten. There is very limited data on FPIES in the U...
News
BPSU surveillance of severe congenital ichthyosis to start this month
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
News
Surveillance of fetal alcohol syndrome started
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
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BPSU study - Congenital ichthyosis
This BPSU study investigates the incidence, early management and outcomes at 12 months, of babies born with harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
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BPSU study - Sydenham's chorea
The first ever prospective surveillance of Sydenham's chorea in the UK and Ireland commenced in November 2018 and will run for two years. This study is being undertaken in collaboration with the Exeter Medical School and the Child and Adolescent Psychiatry Surveillance System. The study aims to exa...