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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Resource

BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

BPSU

Rare disease

Research

Document

BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

BPSU

Rare disease

Research

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Children and young people's voice

Patient experience

Patient involvement

Research

Document

BPSU reporting instructions

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

BPSU

Rare disease

Research

Document

BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings

More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...

BPSU

Rare disease

Public health

Document

Expert witness work - Seeking and providing external second opinions in paediatrics

We explain the importance of expert witness work, how it differs from providing external second opinions and the challenges facing both areas of work.

Health policy

Expert witness

Resource

Growth charts - information for parents and carers

Your child's growth is an important indicator of his or her health. The UK-WHO growth charts allow health professionals to plot and measure your child's growth from birth. Read about these below, and download our factsheets for more detail.

Growth charts

Resource

How to get growth charts and data, and terms and conditions of use

Information on how to access copies of UK-WHO growth charts.

Growth charts

Resource

Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 (PIMS) - national consensus management pathway

Most children are asymptomatic or exhibit mild symptoms from COVID-19 infection. However, a small number have been identified who develop a significant systemic inflammatory response, which is also known as PIMS-TS or PIMS). In September 2020 a national consensus management pathway was published to ...

Immunology

Intensive care medicine

Rare disease

COVID-19