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BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU - Rare Disease Day activities

The BPSU hosts an annual Rare Disease Day tea party - an informal networking event that brings together patients and carers, healthcare professionals, researchers and policy makers.
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Communicating the aims and outputs of the NNAP effectively to parents and families - a case study for NNAP

This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...
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Female genital mutilation - resources

Female genital mutilation (FGM) is a collective term for a range of procedures that involve partial or total removal of the external female genitalia, or other injury to the female genital organs for non-medical reasons. FGM, and taking a child abroad for the purpose of FGM, is child abuse. It is il...
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Improvements to two year follow up assessments for at risk neonates in a district general hospital setting - a case study for NNAP

This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...
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Increasing data completeness for two year follow up data - a case study for NNAP

The following case study was included in the 2016 National Neonatal Audit Programme annual report to highlight how some neonatal networks and units have used NNAP results as a basis for identifying and undertaking local quality improvement activities. It is presented by Dr Kate Palmer, Consultant Ne...