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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

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BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

BPSU

Rare disease

Research

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BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Children and young people's voice

Patient experience

Patient involvement

Research

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BPSU reporting instructions

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

BPSU

Rare disease

Research

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BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings

More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...

BPSU

Rare disease

Public health

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Brexit and child health - Northern Ireland: briefing for members

Northern Ireland is the only part of the UK with a land border with another EU member state. Given that there has been significant integration between Northern Ireland and the Republic of Ireland on a range of areas including health and social care, paediatricians here need further assurances on how...

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Brexit and child health - summary of agreements

During the transition period, RCPCH called on Government to put children and young people’s best interest at the centre of its negotiations with the European Union. We summarise and review the agreements made in the UK-EU deal that will impact on child health and our members.

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Care of unaccompanied migrant children and child victims of modern slavery – consultation response

We responded to the Department for Education in 2017 with recommendations that child health professionals be included in the assessment process to determine whether a child is the victim of modern slavery and human trafficking. Government must allocate more financial resource in order for Local Auth...

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CCT class of 2017: Where are they now? Follow up survey

The Workforce team conducts a survey of new CCT (Certification of Completion of Training) and CESR (Certificate of Eligiblity for Specialist Registration) holders in paediatrics, approximately one year from their certification date. Below, read our key findings from the 2017 cohort study, and downlo...

Workforce

Resource

Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...

Child and adolescent mortality

Neurology

Epilepsy

Research