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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Children and young people's voice

Patient experience

Patient involvement

Research

Resource

Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...

Child and adolescent mortality

Neurology

Epilepsy

Research

Resource

Child Health Reviews - UK : Retrospective epidemiological review of all-cause mortality

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a retrospective epidemiological review of all-cause mortality in the four nations of the UK.

Child and adolescent mortality

Research

Resource

Claiming expenses on College business

Members and others can claim for expenses incurred on College business, including travel, accommodation and meals. Our online expenses system launched in June 2023. This replaces a paper-based system, and should significantly improve how you claim expenses and reduce processing time. To claim exp...

Expenses

Resource

Diagnosis of death by neurological criteria (DNC) in infants less than two months old - clinical guideline

Our NICE accredited evidence-based clinical guideline (published 2015) provides recommendations on the diagnosis of death by neurological criteria (DNC) in infants from 37 weeks corrected gestation (post menstrual) to two months of age (post term). It is for all UK paediatric and neonatal health car...

Child and adolescent mortality

Intensive care medicine

Neonatal medicine

Neurology

Infant

Resource

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2023, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

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Epilepsy12 Round 3 Methodology and Datasets

Round 3 of the Epilepsy12 audit was delivered between 1 April 2017 and 31 March 2022. This page provides details on the methodology and data submission process for Round 3. This methodology extends to Round 4, Cohort 4.

Neurology

Conditions

Epilepsy

Resource

Establishing a correct diagnosis of Ehlers Danlos Syndrome hypermobility type (hEDS) in children and adolescents – position statement

The purpose of this position statement is to clarify the current criteria in making a diagnosis of hEDS in children and adolescents and to provide advice to paediatric health professionals in relation to provision of appropriate rehabilitation.

Rheumatology

Community services

Health policy

Document

Expenses - how to claim expenses on the mobile app

To claim and track your expenses on College business - such as travel, accommodation and meals - you need to use our online system, Continia. There are two options - a web portal on any modern web browser, and a mobile app. These instructions explain how to use the mobile app.

Expenses

All resources

BPSU 'Orange Card' reporting scheme - applying to run a study

BPSU Rare disease tea party - reports from past events

Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)

Child Health Reviews - UK : Retrospective epidemiological review of all-cause mortality

Claiming expenses on College business

Diagnosis of death by neurological criteria (DNC) in infants less than two months old - clinical guideline

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy12 Round 3 Methodology and Datasets

Establishing a correct diagnosis of Ehlers Danlos Syndrome hypermobility type (hEDS) in children and adolescents – position statement

Expenses - how to claim expenses on the mobile app

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