Engaging children and young people

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
BPSU
Conditions
Rare disease
Engaging children and young people
Children and young people's voice
Patient experience
Patient involvement
Research
News

Fragmented approach to child health damaging long term health of nation, RCPCH warns

17 January 2018
Child health is suffering at the hands of a disjointed approach from central Government is the warning from the RCPCH as it publishes its “State of Child Health: One year on” scorecard today. The scorecards for England, Scotland and Wales describe progress against the series of recommendations made ...