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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

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BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Children and young people's voice

Patient experience

Patient involvement

Research

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Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2023, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

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Epilepsy12 Round 3 Methodology and Datasets

Round 3 of the Epilepsy12 audit was delivered between 1 April 2017 and 31 March 2022. This page provides details on the methodology and data submission process for Round 3. This methodology extends to Round 4, Cohort 4.

Neurology

Conditions

Epilepsy

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Growth charts - information for parents and carers

Your child's growth is an important indicator of his or her health. The UK-WHO growth charts allow health professionals to plot and measure your child's growth from birth. Read about these below, and download our factsheets for more detail.

Growth charts

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How to get growth charts and data, and terms and conditions of use

Information on how to access copies of UK-WHO growth charts.

Growth charts

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National Paediatric Diabetes Audit (NPDA) annual reports

Our annual, national reports, 'Care processes and outcomes' highlight the main findings on the quality of care for children and young people with diabetes mellitus in England and Wales. On this page you can download our latest and previous reports, and find links to our reports especially for parent...

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National Paediatric Diabetes Audit (NPDA) Hospital admissions and complications reports 2011-2020

The NPDA admission reports summarise acute emergency hospital admissions where the primary diagnosis is related to diabetes in children and young people cared for in Paediatric Diabetes Units (PDUs) in England and Wales.

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Personal Child Health Record (PCHR)

The Personal Child Health Record, also known as the PCHR or 'red book', is a national standard health and development record given to parents/carers at a child's birth.

Growth charts

Public health

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Stroke in childhood - clinical guideline for diagnosis, management and rehabilitation

This NICE accredited evidence-based clinical guideline provides recommendations for all UK paediatricians and healthcare professionals involved in the regulation or practice of the care of children and young people who have had or are suspected of having a stroke. You can download the full guideline...

Clinical guidelines and standards